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May 28, 2020 Thursday 07:19:39 PM IST

Online survey to assess needs of children and young people with cancer

Parent Interventions

Researchers at the University of Southampton have initiated a study, together with colleagues at the University of York and the Children’s Cancer and Leukaemia Group, to better understand how best to address the concerns and needs of families with children and young people who have cancer who may feel particularly vulnerable during the COVID-19 outbreak. The SHARE study (How to support children with cancer and their parents during the COVID-19 outbreak?) is designed to urgently increase our understanding of evolving experiences, information needs and decision-making of families facing extraordinarily stressful circumstances.

Over 50 families have already responded to the online survey – there is one for children and another for parents and carers - that opened a few days ago by the research teams at Southampton and the University of York. Their aim is to analyse the data quickly and convert concerns raised into guidance and support with the help of national charities, the University Hospital Southampton NHS Foundation Trust and The Leeds Teaching Hospitals NHS Trust.

The researchers plan to the open scope of their study in the near future to include those with heart and kidney conditions. To take part in the SHARE study survey, parents should visit https://cclg.uk/COVID-parent-survey and children and young people should visit: https://cclg.uk/COVID-CYP-survey.

(Content and Image Courtesy: https://www.southampton.ac.uk/news/2020/04/survey-covid-cancer-children-youngpeople.page)