New tool to simplify diagnoses for children facing medical complexities
UMass Lowell faculty researcher Brenna Morse says that too often, children with complex chronic medical conditions spend days in the hospital undergoing tests for what could be a simple diagnosis. The challenges include some children with medical complexities, such as severe neurological conditions and functional impairments, cannot easily signal that they are in pain or point where in their body it is located. Where children not facing such a challenge might be able to have a medical issue resolved with a simple visit to their primary care doctor, others end up hospitalized and going through days of costly testing to arrive at similar diagnoses.
Morse, a UMass Lowell graduate and current nurse of children with complex conditions who has been a faculty member in the Solomont School of Nursing since 2015, and a team of researchers from Boston Children's Hospital have developed a method through which health-care providers can more readily identify the medical issue being experienced by a child who cannot communicate it on their own. Called GRASP (which stands for Guidelines for Ruling out and Assessing Pain), the tool allows providers to more efficiently evaluate pain among children who cannot easily communicate they are in pain or indicate the pain location. The big takeaway, Morse says, is that the method can help find the source of pain in a patient among a population of children who experience pain that is more intense and frequent than others, and therefore help treat it more readily.
Morse and the team developed GRASP through almost a decade of research, beginning when Morse was earning her Ph.D. and continuing through her work as an academic researcher. The Children's Hospital researchers who collaborated with Morse include Jean Solodiuk (nurse manager and scientist, Department of Anesthesiology, Critical Care and Pain Medicine), Christine Greco (acting chief, Division of Pain Medicine), Sangeeta Mauskar (director, Complex Care Inpatient Program) and Julie Hauer (complex care and pediatric palliative care physician).
The research included surveys and focus groups to develop the tool and help determine how accessible and effective GRASP could be for health-care providers. The most recently completed parts of the project were funded by a UMass Lowell seed grant.
The results were recently published in Hospital Pediatrics, a journal by the American Academy of Pediatrics. Morse's goal, she says, is to see more providers trained in using GRASP so that more children with complex conditions may have their pain adequately addressed so that they may be well and enjoying time with their families, in school and in their own community instead of in the hospital.