National Edu News: 32 Children Awarded Pradhan Mantri Rashtriya Bal Puraskar- 2021  |  Education Information: Agri-Food Techathon to promote Technology Innovation and Entrepreneurship  |  Leadership Instincts: India’s Top Thought Leaders provide their vision and ideas on draft STIP  |  Policy Indications: Indian scientific diaspora discuss open science policy  |  Policy Indications: Scientific institutions are critical cradle of innovation and knowledge creation  |  Technology Inceptions: Innovative low-cost intervention tackles water supply challenges  |  Science Innovations: New ant species discovered from Kerala named after JNCASR researcher  |  Science Innovations: CSIR-CMERI unveils ‘Aqua Rejuvenation Plant’  |  Reflections: Food Seasoned with Love  |  Guest Column: The Psychotherapist with Fur and Four Legs!  |  Health Monitor: Dealing With Post Covid Syndrome  |  National Edu News: Secretary Higher Education urges students to emerge as job creators  |  National Edu News: PM addresses the 18th Convocation of Tezpur University, Assam  |  Leadership Instincts: Experts highlight the need for strengthening centre-state cooperation  |  Policy Indications: India’s global position rises both in innovations & publications  |  
April 10, 2020 Friday 01:03:53 AM IST

First mobile app for caregivers of children with FASD reaches trial stage

Parent Interventions

In 2017, Christie Petrenko, an assistant professor and research associate at the University of Rochester's Mt. Hope Family Center, and Cristiano Tapparello, a research assistant professor in the University’s Department of Electrical and Computer Engineering, teamed up to create the first mobile phone app for caregivers of children with fetal alcohol spectrum disorders (FASD). Through previous research, Petrenko, who is a recognized expert on a FASD, knew of the many challenges parents and caregivers face: isolation the lack of access to specialized care, limited financial resources, the stigma associated with the disability, and ultimately the caregivers' quest for readily available and scientifically sound information.

Caused by prenatal alcohol exposure, fetal alcohol spectrum disorders affect around 2 to 5 percent of school-aged children in the United States and can result in lifelong developmental, cognitive, and behavioral problems.

Previous studies have pointed out that available online information for parents of children with developmental disabilities may lack in quality, consistency, and readability. In the past two-and-a-half years, the duo has designed, coded, assembled and written the content for their mobile health intervention app, FMF Connect. Its name and content are derived from the scientifically validated Families Moving Forward Program, developed at the Seattle Children's Research Institute and the University of Washington. The researchers took mock-ups of the app to seven focus groups across the country, and then followed up with two beta tests.

The FMF Connect app allows users to easily access five distinct components:


Learning Modules: training for caregivers

Library: fact sheets and resource lists with medically sound advice

Family Forum: a space for users to share advice and ideas

Notebook: a place to save personalized content


Dashboard: includes a customizable avatar that tracks progress through the Learning Modules and charts child behavior.


( Content Courtesy: https://www.eurekalert.org/pub_releases/2020-04/uor-fma040820.php)



Comments