National Edu News: IIT Hyderabad-NHAI sign MoU for Transportation Research  |  Cover Story: Elimination Round or Aptitude Test- How to Align CUET with NEP 2020 Goals  |  Life Inspirations: Master of a Dog House  |  Education Information: Climate Predictions: Is it all a Piffle!  |  Leadership Instincts: Raj Mashruwala Establishes CfHE Vagbhata Chair in Medical Devices at IITH   |  National Edu News: TiHAN supports a Chair for Prof Srikanth Saripalli at IIT Hyderabad  |  Teacher Insights: How To Build Competitive Mindset in Children Without Stressing Them  |  Parent Interventions: What Books Children Must Read this Summer Vacation   |  Policy Indications: CUET Mandatory for Central Universities  |  Teacher Insights: Classroom Dialogue for a Better World  |  Rajagiri Round Table: Is Time Ripe for Entrepreneurial Universities in India?  |  Life Inspirations: How to Overcome Fear of Public Speaking  |  Parent Interventions: Wide Ranging Problems of Preterm Infants  |  Technology Inceptions: Smart IoT-based, indigenously-developed, ICU Ventilator “Jeevan Lite” Launched  |  Parent Interventions: Meditation Reduces Guilt Feeling  |  
April 10, 2020 Friday 01:03:53 AM IST

First mobile app for caregivers of children with FASD reaches trial stage

Parent Interventions

In 2017, Christie Petrenko, an assistant professor and research associate at the University of Rochester's Mt. Hope Family Center, and Cristiano Tapparello, a research assistant professor in the University’s Department of Electrical and Computer Engineering, teamed up to create the first mobile phone app for caregivers of children with fetal alcohol spectrum disorders (FASD). Through previous research, Petrenko, who is a recognized expert on a FASD, knew of the many challenges parents and caregivers face: isolation the lack of access to specialized care, limited financial resources, the stigma associated with the disability, and ultimately the caregivers' quest for readily available and scientifically sound information.

Caused by prenatal alcohol exposure, fetal alcohol spectrum disorders affect around 2 to 5 percent of school-aged children in the United States and can result in lifelong developmental, cognitive, and behavioral problems.

Previous studies have pointed out that available online information for parents of children with developmental disabilities may lack in quality, consistency, and readability. In the past two-and-a-half years, the duo has designed, coded, assembled and written the content for their mobile health intervention app, FMF Connect. Its name and content are derived from the scientifically validated Families Moving Forward Program, developed at the Seattle Children's Research Institute and the University of Washington. The researchers took mock-ups of the app to seven focus groups across the country, and then followed up with two beta tests.

The FMF Connect app allows users to easily access five distinct components:


Learning Modules: training for caregivers

Library: fact sheets and resource lists with medically sound advice

Family Forum: a space for users to share advice and ideas

Notebook: a place to save personalized content


Dashboard: includes a customizable avatar that tracks progress through the Learning Modules and charts child behavior.


( Content Courtesy: https://www.eurekalert.org/pub_releases/2020-04/uor-fma040820.php)



Comments